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Post by jaylad on Nov 10, 2017 20:05:54 GMT
Hi,
I've been a fairly regular pretender now for about 20 years although mainly as a wheelchair using paraplegic I do occasionally crutch out with KAFOs on both legs. It is just such hard work and the wheelchair is so much easier although I have also now got a pair of carbon fibre AFOs to use when out in my chair.
I'm not an expert on medical conditions but possibilities for a condition requiring the use of a KAFO on one leg could be a partial stroke, a knee problem that can't be operated on (I have heard of this being the case for some people) or some other condition or accident which causes paralysis of one leg. I guess a lot depends on the degree of medical knowledge of the people you might meet and whether you plan to wear your KAFO all the time. Appearing as someone with a disability one day then not the next is never a good idea! If you are happy to start wearing your KAFO permanently then you can always deflect any difficult questions with a few vague comments or say that you really don't want to talk about your condition.
I'm lucky in that I don't have any close family and most of my friends live some distance away so the chances of meeting someone I know are fairly remote, but it did happen once when I first started pretending and it was a bit embarrassing and I certainly lost a friend as a result! I've got a bit more careful since then!
What I have found is that most people are too embarrassed to look at someone who has a disability so it is not too hard to be fairly anonymous. That said I have two sets of places and shops I go too regularly, one when I'm in the wheelchair the other when I'm not. There are several local shops that I have never set foot in - only wheeled. I also have two styles of dress, one which people I regularly associate with are used to and another different style when I'm a paraplegic. In the latter mode I wear glasses which I don't really need, a baseball cap or hoodie and tend to wear trackies and similar clothes - completely out of my able-bodied character. If you are out in disabled mode it is I always a good idea to keep an eye on who might be around and avoid getting too close too people who might recognise you. I know that is easier said than done and there is always the risk of a surprise attack! Mobile phones can also be handy, as when you are looking down at the screen your face is harder to recognise.
So having now said all that I'll probably go out tomorrow and get recognised and have a really embarrassing time!
Anyone else got any thoughts ideas? It would be really nice to get a bit of life back in the forum!
Hope this all helps Jaylad
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Post by strzeka on May 13, 2018 10:55:32 GMT
Agree with you that some life in here wouldn't come amiss.
I've never heard of people adopting a different persona when it comes to clothing but it sounds intriguing! I guess for me it would mean switching between quasi-military wear and leather. The latter attracting probably more attention than a pair of callipers!
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Post by castmenow on Mar 17, 2019 15:53:55 GMT
Resurrected an old thread, I had not really noticed this thread before, but it pertains to my latest outing because I was wondering at the time what I would say if someone asked. I can not recall when polio vaccination started in the UK, but I do know someone who is in their mid 60s who contracted a mild case of polio when they were a child and recovered from it, but is now suffering again from post polio syndrome to the extent that he has a back brace and his specialist has suggested leg braces, which he adamantly refuses. Those in our 50s certainly had polio vaccinations at school. Anyway, there is one possibility if you had a reason for getting polio, such as you were not vaccinated because you were abroad with your family when a youngster. I also thought about something along the lines of a neuro-muscular condition that results in leg weakness but not paralysis and your knee often giving away, hence a KAFO and with many of these, the symptoms come and go, hence getting around with and without is possible. To me this seems a good reason because you may slip and move your legs whilst sitting, which full paralysis would prevent. I had a bad case of sciatica with a trapped nerve once and at times that would get set off and my leg would go temporarily weak and nearly collapsed under me a few times.
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